The day I was diagnosed with Multiple Sclerosis.
Just before the MRI result came, the owner of the diagnostic
centre came to me and said that my brain was swollen. I was startled, and anyone
I think would be startled at what was he trying to say. Imagine this! Oh your
brain is swollen! He then went on to ask, had I ever had any injury on my head.
Well... Yes!! It happened during my sister’s wedding. While shopping for her friends
who came from England especially to experience the Big Fat Indian wedding, I
had gone to New Delhi to buy everyone ‘GHAGRIS’ and ‘JHUMKIS’ and all those
things typically Indian as I didn’t want to leave any stone unturned being the
wedding planner. It was morning time and the stalls were being put up, so I was
finding something for myself, when suddenly, BANG went an Iron rod on my head.
The pain was intense however; it got better after a few hours of putting
ice-pack on my head. I still managed to get everyone the clothes. YAY! And the
wedding was beautiful. Double YAY! But literally ‘coming back’ to the head
injury, after six months a thick wooden board fell on my head again. What are
the odds!!
Both the times, we didn’t feel the need to get my head checked
for any internal injury. There was a pain in the neck and for that I got
physiotherapy done which made it better. Everyone made fun of me saying I
should wear a helmet when I go out. They still say it though, since I am a bit
accident prone.
The MRI result came and it was time for follow up with the
neurologist. The follow up went something like this. They checked my blood
pressure, weight and temperature. Then the doctor’s assistant saw me, and asked
me lots of questions, like what are you feeling? Can you see from your right eye? Can you walk? Can you hold a pen? I was so nervous and answered every
question. Told him what I was feeling since the last few weeks, like fatigue,
blah blah...basically obvious MS symptoms that I had started to only recently
feel. And which my mom thought was because I never used to eat almonds, or go
for my walk, or because I don’t wake up early or eat iron capsules.
Then came the time to meet the neurologist who made me feel
uncomfortable with how normal he felt about the entire thing happening, about
my life changing. I was again shaking, and felt like I couldn’t breathe when I
went to see the doctor. He checked my eye, and then checked my reflexes, the
way I walked, I sat, my arm movements etc. Till then I was clueless what was he
trying to do. That doctor was not very expressive, a bit stern and whatever we asked
him, wanting lay man answers, the response was not cordial enough to make us
feel comfortable, which I now feel no response would have been. Then he did the
most peculiar thing, he wrote ‘MS’ with a question mark. He said that you would
be treated with high dose of steroids, having to be hospitalized for that, and
thereafter go and see him. Get these blood tests and x-rays done and show me.
The only question that troubled me then was, AM I DYING? To which he simply
said a no.
What do I have I then asked? It’s a neurological problem he
said and this and that. Then why a question mark? Because it’s her first attack
we will get to know for sure from the lumber test. Then we didn’t have much to
ask at that time, and we walked out of the clinic. The moment I sat in the car,
I burst into tears and my mother in law was trying to calm me down, and my
fiancé had nothing to say. Till then I was still not sure what I had. We were
going for the blood test and x-rays.
Everything was done and we came back home all confused about
my future, about my life. I didn’t know what was happening. Everything was so
vague. I didn’t even want to Google it. All I knew was, I was getting hospitalized
tomorrow morning and HOPED I would gain my eye sight back. With a sinking
feeling I prayed and slept.
Fear of not
knowing what was happening or what will happen was even worse than the lost of
my eye sight. I knew in my heart that this will be fine. But the FEAR which was
prevailing inside me wouldn’t let me believe that I will be fine.
Just like Johann Wolfgang von Goethe said “It
is the strange fate of man, that even in the greatest of evils the fear of the
worst continues to haunt him’’
I prayed
cried, prayed cried to overcome that fear within, but eventually slept. The beauty
of sleep as it is, it will always come to you no matter WHAT!
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ReplyDeleteWow Rajo!! Keep it up!!
ReplyDeleteThanks
DeleteThanks
DeleteHey rajni... are you alright gal???
ReplyDeleteHey rajni... are you alright gal???
ReplyDeleteYes! Thank you
DeleteThank you! Just hope that through my experience, the patients who just got diagnosed with MS reads it and fight the disease. Its difficult thing to do but Let's support and create awarness.
ReplyDeleteThank you! Just hope that through my experience, the patients who just got diagnosed with MS reads it and fight the disease. Its difficult thing to do but Let's support and create awarness.
ReplyDeleteU are so cheerful whenever I see you.. In fact whenever I remember you , I visualize a girl with a BIG smile. Reading through this makes me realize the reason behind that big smile...a BRAVE girl who is strong enough to turn everything into positive. More power to you Rajani... muaaah
ReplyDelete